Genetics Appointment - and then some.
I wrote this post a while back, but never managed to add it to my blog - so it's popping up where it belongs, even though new posts have been made since!
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I guess weird is a good word for it.
We stopped for lunch on the way to montreal - and i decided to suck it up (i have issues, really i do!!) and call the clinic and ask to speak directly with that girl who had told us they could fit us in for sure if we happened to be in montreal because we're from far. I leave her a message, ask her to call me back on the cell. We get to montreal - it had been about an hour since i had called - we park - go to the parking machine, come back to the car... we're just about to put the ticket in the car - A. says "oh my god - that's the phone" jumps in - answers... she says "we can "fit you in" this afternoon - at 1:30" I said that wont work - our appointment is at 1 - could it be at 3 - just to be safe. She says the lab closes at 3 - so it has to be before - i said "ok, we'll try our best to be there between 2:30 and 3, thank you" At one point she said "i can give you 1:30, or 2:00 or 2:30..." um... funny that they have ALL of this availability but more than once A. was told it was absolutely impossible between now and October? sure...! :( ANYWAYS - all that to say - we were about to head into the children's hospital for our genetics appointment - so the phone would have been OFF obviously - and we don't have voice mail on that phone! It was such timing - it was crazy...
So we go for the genetics councelling - after spending a while in a children's waiting room to get our hospital cards... i have to say that it's kind of ironic that we had to do this at the children's hospital, don't you find? but then again, it's incredibly logical - they usually do genetics testing in kids!! on a good note - that means that the service/staff was all incredibly nice, which helps!
The councelling part was like an hour talk on what this could mean and answering questions and stuff... she talked with the assumption that A. was missing what he was apparently missing, although we did tell her that it was probably now the wrong diagnosis - but still. On top of it - now we know that his cousin is a carrier, so there's a high chance that he could be too even if he doesn't have what the specialist originally thought. More than that - apparently french canadians are at an incredibly high risk... and they've really been studied at this hospital - so much that it had a spot for ethnic group on the form and the first is French Canadian - and then there were only 4 more listed (including other) So in a way that's good - cause the detection rate is higher in french canadians because they've studied it so much (i say that cause they can test for something like 400 things in blood - and they now know which of those things should be tested for french canadians for example... otherwise, they only test for the main things)
Then she said "now you have to go to the lab, get bloodwork done..." i'm staring at the clock... i ask "can we leave, and come back? We need to do another test before 3..." SURE, no problem... SOOO we leave the children's hospital - head to the Royal Victoria hospital. It's CLOSE. Takes us about 35-40 minutes to get there - we're freaking out. We drive to the closest door, A. jumps out and runs basically - it was passed 2:45... but it was fine!! I waited in the car (if you saw this parking lot, you'd understand!) and then we drive back to the children's hospital. 10 minutes. Isn't that crazy?! On the way there we were in a hurry - it takes forever - on the way back - super quick... anyways- we go to the lab - we didn't wait too long... again, funny - cause all geared towards children... although it was kind of hard to watch so many sick ones go by :( but we finally go in... i seriouly cannot believe that the woman who took our blood normally takes children's blood. She was AWEFUL - i felt like launching a complaint. She was nice, but goodness she hurt us - and taking blood never hurts... She tied the thing on our arm SOO tight - i almost went cross eyed - usually it hurts a little - but goodness not that much! AND THEN when it was my turn - she couldn't find the vein. This happens often with me - so much that i typically tell the technician that this is the case... the last 3 times i've had it done in wakefield the techs almost laughed at me afterwards saying that they weren't hard to find at all! SOOOO i didn't say anything to this girl... mistake. Once she had it in - she was like fishing for my vein - and kept looking at me asking me if i was ok...?? I was like "um, yeah - i'm fine - ARE YOU??" in the sense that "do you know what you're doing?!" cause she fished for a while - A. said he almost yelled "obviously, that's not working, try somewhere else" he was nearly sick just watching her fish in my arm like that!! And at that point i said "yeah - my veins can be hard to find apparently..." anyways- then she took 4 things of blood, then you know how they pull the needle out and put a gauze on it - well, she pushed the gauze on me before the needle was actually out - which obviously hurts a little... right? I just kept thinking "um, you don't do it that way..." but on top of it thinking "goodness that must hurt a kid?"
you'd think that the lab technicians at the children's hospital would be the cream of the crop? it was very weird...!
AND THEN - we leave to drive home. It's now 4pm. took us an hour and a half to start really moving. We've left montreal twice in rush hour - and never sat in traffic like that - obviously, summer is over! We stopped for diner (fast food so not long) - and for 10 minutes at petsmart - and we got home at 8:15. Left the house at 9 am. We were so tired... I just kept thinking "great way to start our week, don't you think?"
Anyways - now our appointment on the 21st should be more valuable... and then on the 5th we may actually be able to discuss plans... IF everything goes "well" (keep your fingers crossed!) it could be that we could start IVF this fall i guess - depending on our new diagnosis with A. i guess... We shall see!
-----
I guess weird is a good word for it.
We stopped for lunch on the way to montreal - and i decided to suck it up (i have issues, really i do!!) and call the clinic and ask to speak directly with that girl who had told us they could fit us in for sure if we happened to be in montreal because we're from far. I leave her a message, ask her to call me back on the cell. We get to montreal - it had been about an hour since i had called - we park - go to the parking machine, come back to the car... we're just about to put the ticket in the car - A. says "oh my god - that's the phone" jumps in - answers... she says "we can "fit you in" this afternoon - at 1:30" I said that wont work - our appointment is at 1 - could it be at 3 - just to be safe. She says the lab closes at 3 - so it has to be before - i said "ok, we'll try our best to be there between 2:30 and 3, thank you" At one point she said "i can give you 1:30, or 2:00 or 2:30..." um... funny that they have ALL of this availability but more than once A. was told it was absolutely impossible between now and October? sure...! :( ANYWAYS - all that to say - we were about to head into the children's hospital for our genetics appointment - so the phone would have been OFF obviously - and we don't have voice mail on that phone! It was such timing - it was crazy...
So we go for the genetics councelling - after spending a while in a children's waiting room to get our hospital cards... i have to say that it's kind of ironic that we had to do this at the children's hospital, don't you find? but then again, it's incredibly logical - they usually do genetics testing in kids!! on a good note - that means that the service/staff was all incredibly nice, which helps!
The councelling part was like an hour talk on what this could mean and answering questions and stuff... she talked with the assumption that A. was missing what he was apparently missing, although we did tell her that it was probably now the wrong diagnosis - but still. On top of it - now we know that his cousin is a carrier, so there's a high chance that he could be too even if he doesn't have what the specialist originally thought. More than that - apparently french canadians are at an incredibly high risk... and they've really been studied at this hospital - so much that it had a spot for ethnic group on the form and the first is French Canadian - and then there were only 4 more listed (including other) So in a way that's good - cause the detection rate is higher in french canadians because they've studied it so much (i say that cause they can test for something like 400 things in blood - and they now know which of those things should be tested for french canadians for example... otherwise, they only test for the main things)
Then she said "now you have to go to the lab, get bloodwork done..." i'm staring at the clock... i ask "can we leave, and come back? We need to do another test before 3..." SURE, no problem... SOOO we leave the children's hospital - head to the Royal Victoria hospital. It's CLOSE. Takes us about 35-40 minutes to get there - we're freaking out. We drive to the closest door, A. jumps out and runs basically - it was passed 2:45... but it was fine!! I waited in the car (if you saw this parking lot, you'd understand!) and then we drive back to the children's hospital. 10 minutes. Isn't that crazy?! On the way there we were in a hurry - it takes forever - on the way back - super quick... anyways- we go to the lab - we didn't wait too long... again, funny - cause all geared towards children... although it was kind of hard to watch so many sick ones go by :( but we finally go in... i seriouly cannot believe that the woman who took our blood normally takes children's blood. She was AWEFUL - i felt like launching a complaint. She was nice, but goodness she hurt us - and taking blood never hurts... She tied the thing on our arm SOO tight - i almost went cross eyed - usually it hurts a little - but goodness not that much! AND THEN when it was my turn - she couldn't find the vein. This happens often with me - so much that i typically tell the technician that this is the case... the last 3 times i've had it done in wakefield the techs almost laughed at me afterwards saying that they weren't hard to find at all! SOOOO i didn't say anything to this girl... mistake. Once she had it in - she was like fishing for my vein - and kept looking at me asking me if i was ok...?? I was like "um, yeah - i'm fine - ARE YOU??" in the sense that "do you know what you're doing?!" cause she fished for a while - A. said he almost yelled "obviously, that's not working, try somewhere else" he was nearly sick just watching her fish in my arm like that!! And at that point i said "yeah - my veins can be hard to find apparently..." anyways- then she took 4 things of blood, then you know how they pull the needle out and put a gauze on it - well, she pushed the gauze on me before the needle was actually out - which obviously hurts a little... right? I just kept thinking "um, you don't do it that way..." but on top of it thinking "goodness that must hurt a kid?"
you'd think that the lab technicians at the children's hospital would be the cream of the crop? it was very weird...!
AND THEN - we leave to drive home. It's now 4pm. took us an hour and a half to start really moving. We've left montreal twice in rush hour - and never sat in traffic like that - obviously, summer is over! We stopped for diner (fast food so not long) - and for 10 minutes at petsmart - and we got home at 8:15. Left the house at 9 am. We were so tired... I just kept thinking "great way to start our week, don't you think?"
Anyways - now our appointment on the 21st should be more valuable... and then on the 5th we may actually be able to discuss plans... IF everything goes "well" (keep your fingers crossed!) it could be that we could start IVF this fall i guess - depending on our new diagnosis with A. i guess... We shall see!
posted by Winnifred at 11:21 AM
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